Tuesday, January 3, 2023

New Year, wish it were better

I've been having dialysis problems.  I'm not draining.  My employer changed insurance last December 1, it was supposed to be transparent to us.  Well, for my primary doctor & kidney clinic, it seems to be.  Trouble is my catheter that is used to bring in dialysis fluid and drain is plugged up with fibrin.  That's kind of like scar tissue that the body creates.  So between the new insurance and people not working between Christmas & New Year, I haven't been able to see the doctor I need to see.  Namely, the vascular surgeon who put in the catheter.  

I've been able to "see" my primary doctor and my kidney doctor/team and we've had a couple failed attempts to clear the tubes. As of today, it's been 10 days since my last dialysis treatment.  I wasn't able to schedule last week & do stuff as if I were already retired.  I've spent all this time dealing with insurance bureaucracy.  It's really frustrating.  I sent a letter to HR, I'm not coming back into the office until my dialysis resumes normally.

Edit 1/6/23: I did get to see the surgeon today, he's set me up for outpatient surgery on Monday.  Sounds like he did consult with my kidney doctor.  However, my boss couldn't wait for me.  He called Thursday to ask me to do what I can from home.  I just know I couldn't have gone into the office because he hates to see people on their personal phones in the office.  I've been advocating for myself 9am to 9pm until I got that surgery scheduled.  So I did get in a few hours of work on Friday, interrupted by a 2 hour errand.

Edit 1/15/23: Won't go into the details, so did revision surgery (laproscopy) on Monday, the 9th.  Then went under again for 2nd revision surgery yesterday/Saturday.  It's a quick surgery but it can't be done in the doctor's office and it's under general anesthesia.  Praying for good drainage for me and for California.

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